Fibromyalgia/CRPS – Sensitivity to touch, hot and cold

As a fibromyalgia and CRPS sufferer, I am sensitive to touch, hot and cold water and/or temperatures. I cannot withstand snug or tight clothing much of the time and prefer to wear loose fitting attire. Also, it pains me when someone reaches to grab me, bump or run into me, and step on my feet. It is an excruciating pain that surpasses regular pain.

I cannot withstand water that is more than about 80 degrees Fahrenheit and prefer warm water only when it comes to bathing. I cannot handle cold water or cold weather as my pain flares up with a vengeance. Temperatures over 80-85 degrees Fahrenheit makes me feel nauseous.

Does anyone share my experiences not being able to wear snug or tight clothing?

What about sensitivity to touch, hot and cold

Tell me what your going through, your remedies and such.

Stay Up, Stay Mobile, & Stay Motivated!

21 thoughts on “Fibromyalgia/CRPS – Sensitivity to touch, hot and cold”

  1. I have CRPS and from what I understand from my physiotherapist is that complex regional pain syndrome had the name changed because after studies… They found that this disease is alot more complex then they originally knew about… So everyone’s experience is different.

    With me… My foot and leg experience sensitivity to air …. In a major way… I absolutely cannot deal with the cold at all in no way shape or form….I absolutely can never put ice on my foot. And its so bad I can’t even get into my own refrigerator. However, I can tolerate extreme heat on 98.9% of my days… So hot that I probably am literally burning my foot and leg but it’s always so cold that I can’t stand NOT to have the heating pad on it 25/8. I take a heating pad wherever I go. I found a portable heating pad. I have to buy new ones every couple months because they aren’t meant to stay on 25/8. I’m the 2.1% of the days that my foot can’t stand extreme heat… It will stand medium heat but always heat heat heat heat!

    Nothing can be tight fitting on my foot. I have to wear soft fuzzy socks because any other sock hurts. I can’t wear a shoe on my foot for more than 5-10 mins TOPS! Now my leg is a different story I have to keep it wrapped up with a soft blanket including when I go outside. Even when it’s 100• degrees outside. If There’s wind it sends me into a flare. So blankets go with me everywhere. I’m in excruciating pain every single day 25/8. Never ending pain!

    Hope this helps anyone understand understands little better or deal with their CRPS better!

    1. I truly empathize with you and agree on what your doctor said on how it affects everyone differently. I too cannot wear closed shoes for too long. I do find comfort in wearing shoes without straps or open at back of ankle. Since I am also sensitive to touch, temperature, and water, I wanted to mention that the wind sends me into a flare as well. I appreciate that you posted how CRPS affects you and I hope that it provides a better understanding to anyone who reads it.
      Feel Better Soon.
      Stay up, Stay Mobile, & Stay Motivated
      Tesa The Motivator

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